Unexpected


So, I started off the month of March knowing that my meds wouldn’t make it through the month. I had an insurance change and the new one isn’t effective until April 1. Anyway, my sleeping meds ran out last Tuesday. My husband has let me take his, but they make me so drowsy when I wake up I don’t really like to take them. But when the choice is sleep or sleep very little you take the pill.

I got in a kind of a fight with my sister last week, except it wasn’t really a fight to me. I was trying to suggest that what she thinks is happening might not in fact be the case. But I guess it came out badly and I assumed she knows things that she doesn’t actually know. I don’t know.

But I do know this. More times than not in these situations I end up feeling like my experiences and what I think isn’t as good as someone else’s. Now she did not say that to me. I do t think that she ever would. But she did tell me basically not to take it personal. My Mom told me the same thing. While I can see that and I understand in theory the ability to do that. Not taking stuff personally really isn’t who I am. Sure, on some things but on the things involving the people I love and care about they ARE very personal.

And it’s not just that they are people I care about. It’s that so much of who I am and what I do is wrapped up in being an advocate for people who are different or who can’t or won’t stand up for themselves. Even at work. Many people have some of the same thoughts and issues I have, but often they don’t say anything. And so I do! It is personal to me when I share my story or when I try to get someone to see a different perspective through asking questions.

I can’t tell you how many times I have been right and had to keep my big mouth shut instead of saying I told you so. But the worst part is that often my advice isn’t even remembered. When that I told you so moment comes, I have to pretend like I didn’t already give the advice that would have resulted differently. I get tired of people telling me that I’m wrong or that I do something in the wrong way. When the truth is it isn’t wrong, it’s just different. Just one time that when things get hard someone chooses to say “her deliveries wrong, but maybe I should consider what she is saying”. But that doesn’t happen. People are too busy finding me wrong to think that what I am saying could be true.

And the sad part is. There are certain things about me that will never change. I will always be loud at times. I will always be passionate and uninterested in hearing people’s excuses. I spend every day trying to think of others and treat them the way I would want to be treated. But it seems because I am those things I don’t deserve the same thought in return. And before you start thinking I’m over reacting. I’m not. Because I have the ability to look at myself and be very honest and truthful other people seem to think they should do that as well. That what I’m saying must be wrong and that they have a duty to tell me how imperf3ct I am. It’s not something that has happened once or twice. Or that happened more when I was younger. It happens again and again. From people in all different areas of my life. Do you know how many times someone has apologized to me?? Well, none. I’m sure there was someone in there. But most of the people who apologize to me are people who really have no reason to apologize. Those times when I would most like to hear it, it’s “crickets”. Except for my husband. He tells me he’s sorry. He has apologized more than once for small things and for the really big things. More and more I realize he is the ONLY person that sees me for me and sees the good things instead of always the bad things or the different things. He has taken the time to know me, and he uses what he knows to help make our relationship better.

I’m tired of being different. I’m tired of watching while people are able to be fake and impersonal with others and I simply don’t really have the ability to do that. Some would say it’s because I don’t want to. But that’s not true. Truthfully, it’s because I view all those things as lies and partial truths. The fact that people have to lie and be fake in order to live in this world truly pains me. It’s not honest, genuine, and it definitely isn’t real. What’s worse is that so few people are like me, and so few people truly share my illness. It isn’t fake and it’s not going to go away. Anyone who knows me will tell you I am as stubborn as they come, so if they believe thatwhy is it so easy for them to say that if I wanted to change other things. Some things sure. But those things that have been with me in many cases since before I can even remember doing them. Why is it ok to be kind, and follow rules, and to be conscientious?? But it’s not ok to be stubborn, outspoken, and question everything? Because that’s what it boils down to. People view my questions as a judgment that what they are saying isn’t right or that I don’t agree with them? When nothing could be further from the truth. I ask questions because I want to know things. I ask questions because people’s thoughts and motives nd childhoods matter. I ask because when I speak I want to be confident in what I’m saying and I want to be as logical as possible.

But it’s hard for me to stay neutral with my illness. I’m not a person that sees it everywhere. In fact the opposite. It takes a lot for me to even really want to approach that subject with someone, outside of my own experiences, and I NEVER do it lightly. It isn’t something that I want people to have. It’s something I do my best to talk people out of thinking if I can. I advocate good and extensive testing. But I know what it’s like to live in my head. I know what I thought as a teenager and I am painfully aware of how different my mind is. It’s because of that that I never want someone else to suffer. If I can help someone avoid that I will do whatever I possibly can. And it’s not something I want someone to take my word on. I just want someone to see my life and what has happened to me and find value in it enough that someone else’s life might be changed.

As much as sometimes people might think so, I don’t want to hurt anyone. But there are truths in this life that don’t change. And have a way of coming out with time. Watching someone hurt themselves when they don’t have to is hard. But being dismissed, rejected, and ignored is even harder. Shouldn’t we err on the side of caution. Shouldn’t we deal with the truth instead of just doing the same things and hoping they will change.

I have good kids. 3 good kids. I have a son in college and I have been a mother for almost 20 years now. I know my kids aren’t perfect. But people love them. I have someone tell me on a regular basis how good, or hard working, or kind they are. From everybody: co-workers, ex co-workers, teachers, friends, friends parents. It is something that I am very proud of. Sure we are all born with different personalities but parents play a big part. And while I’m not now and have never claimed to be perf3ct I/we had to have done something right, right?!?! Or maybe not. Sometimes by the way people act I think “well maybe God just gave me good kids cause he knows I’m such a mess that I couldn’t handle something different”. Truly, sometimes I believe that. Because it’s sure not like too many people close to me act like I’ve done a good job!! Or seem to listen to me and think “well, she does have good kids maybe she knows a little something”.

So I’m tired. I’m frustrated and I’m pretty lonely. People say they are there or will be there. And some are. But none of them really understand or know me. They don’t trust that I know things, sometimes with no reason to know it. They put me in a box “of oh that’s just her” and they forget to look at me and really see me. They forget that I’m a person and that sometimes there are a lot of really great things about me. But I almost never hear that. I’m tired of being everyone’s cheerleader and building them up and making them feel special, just to have almost no one do the same for me.

Thanks for reading! I will stop my loud and rambling thoughts now. Be blessed!!!

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